Montreal man with ALS shares story during awareness month

June is ALS Awareness Month in Canada, and advocates are using it to remind people that amyotrophic lateral sclerosis remains incurable and fatal. In Montreal, Normand MacIsaac has been living with ALS for more than a decade and is sharing his experience to support other patients and families. After being diagnosed in 2014 at age 51, he said he went through shock and denial before choosing to focus on advocacy, gratitude, and the help of his family. MacIsaac said the disease has changed nearly every part of daily life, especially communication and independence. His wife, Christine, has served as his primary caregiver, and he says he still tries to stay active, travel when possible, and write about his experience. The article also highlights research progress in ALS, including work supported by funding from the 2014 Ice Bucket Challenge campaign. Researchers say early diagnosis remains important, and they see continued advances in understanding and treatment.